Vocational Training and Autism (Update)

First Ever Program

The Hartford Courant is reporting on a test program being proposed that would offer job training for young adults on the Autism Spectrum.

There's a bill in the Connecticut Legislature that would fund job training for 100 young adults on the Autism Spectrum. The program would be run by The Department of Developmental Service and The Bureau of Rehabilitative Services over a two year period.

Some Challenges

There are several issues the program will need to address. The program will need to hire job coaches who understand the challenges of Autism. Part of the training needs to be in soft skills. Interpersonal interactions could be a weakness for the autistic worker.  And...the program needs to be much larger.

The bill funds a two year pilot program and will offer measurable results.

100 young adults barely scratches the surface. It is estimated there are over 54,000 persons with Autism Spectrum Disorders in Connecticut. Most adults lack services needed to be employed, and most adults with Autism are unemployed. Jobs are crucial as parents age and are no longer able to care for their adult children.

High Unemployment Rate

A huge majority of adults on the Autism Spectrum are unemployed. Among those with developmental issues, the rate of unemployment. According to an article in Forbes, about 18% have a job and 14% are in college. Yet, over half of those on the spectrum have IQ's that are average or above. If we were to do something about this, many more individuals would be contributing to our society instead of collecting ever decreasing benefits. By focusing on the needs of individuals, Their self-esteem and self-worth would increase, and all of us would benefit.

Autism and Chicken Soup

Understanding Ends Isolation

Being on the Autism Spectrum can be an isolating experience, but it doesn't have to be that way. 

The Chicken Soup for the Soul series now has an Autism Book. The publisher and editor-in-chief of the series Amy Newmark was recently interviewed by WTNH's Jim Watkins. 

"The 101 personal stories in Chicken Soup for the Soul: Raising Kids on the Spectrum create a portable support group for parents of children with autism spectrum disorder. They will see pieces of themselves reflected in the stories by other parents and also by people who have been diagnosed with autism and Asperger syndrome. This book also makes it clear that every child on the spectrum is an individual with a unique set of talents and non-neurotypical behaviors."

The Chicken Soup for the Soul company is now located in Connecticut.

http://wtnh.com/2014/08/03/chicken-soup-for-the-souls-autism-book/

Akron Student with ASD Gets $100k Accomodation

Parents Win Appeal

State Impact is reporting the Akron School Board ok'd a one year accommodation to send a student with Autism Spectrum Disorder to the Monarch School in Cleveland.

Public school pays $101,972 to send Akron student to private school in Cleveland 

The Monarch Center for Autism provides a comprehensive living and learning environment for children and adolescents with Autism Spectrum Disorder (ASD). According to their website, Monarch School and Monarch Boarding Academy are grounded in a language-based treatment Model that is respectful, empowering and kind. The price of a year at the school exceeds $81k which puts it out of reach for most parents. Affordable treatment, therapy and educational accommodations is out of reach for many parents. The average spent by school districts nationwide to educate children with ASD is around $17k per child.

Accommodation Outside the Norm

Schools in Ohio generally give parents $20,000 a year if they want to take their children with Autism out of public school to help with costs. In this case, the parents appealed. The Akron district settled. Assistant Superintendent Ellen McWilliams told the Akron Beacon Journal., “You have to look at whether it’s good to continue fighting or not.” She says that in most cases, the schools are equipped to meet the needs of special needs children.

The accommodation is for one year, but could be renewed until the child ages out of the school system at age 22.

Hiring Autism

Disappointing Statistics

• The Journal of the American Academy of Child and Adolescent Psychiatry found  that only half (53%) of young adults with an ASD had ever worked for pay outside the home in the first 8 years following high school, the lowest rate among disability groups even when controlling for impairment severity, household income, and social demographics.
• The same study found only 34% were employed at the time of the survey interview.
• And one in five worked full-time with average earnings of $8.10/hour, significantly lower than disability comparison groups. (The Journal of the American Academy of Child and Adolescent Psychiatry)

Despite the disparities, there are some gains. Some companies are seeking out mostly high functioning individuals with Autism Spectrum Disorders (ASD). The numbers are small when you consider about 50,000 young adults age out of the support system each year. Much more needs to be done to support these gifted individuals.

  Some See the Light

There are some companies that are going out of there way to hire those with ASD. Below are some examples.

SAP Labs announced they will hire 60 persons with ASD as part of their initiative to employ one percent of their workforce with Autism Spectrum Disorders. Headquartered in Walldorf, Germany, with locations in more than 130 countries, SAP SE calls itself a world leader in enterprise software and software-related services.

 Extraordinary Ventures employs young men and women with autism and other developmental disabilities. They create jobs and fund our programs through our space rental business as well as laundry services and other ventures. Based in the university town of Chapel Hill, NC, Extraordinary Ventures, Inc. (EV) is a 501(c) (3) non-profit organization that creates and nurtures self-sustaining small businesses designed around the skills of the young adults with autism and developmental disabilities that serve as its workforce.

Some with ASD are entrepreneurs. Temple Grandin, a well-known Autism advocate says, "autistic people can become business owners if they're allowed to develop interests that can be turned into a living." Grandin has a business designing systems to handle livestock. She became interested in animals working on a farm in her teens.

  Ultra Testing almost exclusively hires employees who are on the autism spectrum. ULTRA provides a full suite   of manual testing services for websites, digital campaigns, mobile applications and enterprise solutions. According the Ultra's website, over a third of the ASD population, approximately 500,000 adults, have Asperger Syndrome or similar ASD profiles, have completed high school and/or college, and can have heightened abilities including those required to be an exceptional software tester, e.g. pattern recognition, focus, attention to detail, tolerance for repetition. However, due to a combination of factors including difficulties with social interactions and interpersonal communications, 80% of this population are currently not employed. Using cutting-edge tools, specialized training and customized workflows, ULTRA is unlocking the potential of this vast, untapped talent pool, and in doing so, bringing excellence to the software testing industry.

ASD Teen Wins Jeopardy Playoff!

Jeff Xie is the new teen champion for Jeopardy. He did it in a first ever tie-breaker for the tournament.

Jeff will use his $75,000 prize for college and to do a little travel.

Eight Things You Should Know About Autism

Some Things You Should Know

Columnist Dan Tynan shares eight things you should know about Autism in YAHOO Tech in his article "Eight Things You Ought to Know About Autism (but might not)." Gaining understanding about Autism Spectrum Disorders (ASD) can be an uphill battle. As a fundraiser for FOCUS Center for Autism I've run into roadblocks. But, when we get a chance to speak about ASD and share the stories about the children we treat at the Extended Day Treatment Program, those barriers often come down. FOCUS Center for Autism is Tynan breaks down some of the barriers and challenges other long-held "truths."

Controversial Comments

Four of his comments are controversial. I happen to think that's a good thing. The comments will further the discussion and cause those of us in the autism community to dig deeper for answers.

It’s kind of a geek thing. 

The saying goes, "If you meet one person with Autism, you've met one person with Autism. To be sure, some of the kids are geeky. Some of them are not. It would be just as valid to say that some of us not on the spectrum are geeky. If you've ever been to the Spectrum Unplugged Panel you are going to find children and young adults who love writing poetry, a proficiency in math and science, a love of reading, an interest in comparative religion, creating comics, playing instruments and song-writing.

But it’s not an epidemic.

If you look at the strict definition of Epidemic, Tynan is right.  Epidemic; a widespread occurrence of an infectious disease in a community at a particular time. This definition would be more appropriate to measles and polio. It might be more appropriate to say diagnosis of ASD has reached epidemic proportions.

It is not caused by vaccines.

The original report linking the MMR Vacine to Autism published in the Lancet was found to be a fraud. Since then the independent Institute of Medicine concluded in August 2011 that the use of vaccines — particularly the measles mumps rubella (MMR) vaccine routinely given to children under the age of 6 — has no relationship to the rise in ASD cases. The American Academy of Pediatrics issued a similar report in April 2013.

It can’t be cured.

This is sure to cause controversy certain circles. Major fundraising efforts are based on finding a cure. Tynan explains, "In fact, some autism advocates bristle at the notion that ASD is a condition in need of a cure. Others in the ASD community are desperate for a solution to the daily struggles of their autistic offspring. But while autism isn't a disease that can be cured, it is a disorder that can be treated."

What FOCUS Does

FOCUS Center for Autism’s mission is to help children and young adults with Autism Spectrum Disorders achieve their full potential. Since becoming a nonprofit in 2000, FOCUS has developed a well-respected Milieu Therapy model of treatment that has now served over 600 children and families.
With an emphasis on planned environments (milieu), and relationship building, FOCUS helps address the many challenges children, and young adults with Autism Spectrum Disorders are confronted with every day.