Saturday, September 28, 2013

Creating jobs for their Autistic children

A Proactive Choice - Some Parents Stepping In

There's a report in USA Today about parents creating jobs for their Autistic Children. The story features Lori Ireland and her non-profit organization Extraordinary Ventures which employs 40 young adults on the Spectrum. They're doing jobs cleaning buses and making candles. 



http://www.usatoday.com/story/news/nation/2013/09/28/autism-jobs-parents/2839027/

The article also mentions The nonPareil Institute in Plano, Texas. The Institute started five years ago to offer the founder's children training in technology. The non-profit trains young adults on the spectrum to develop digital games and apps. The cost is $675 a month. According to CEO Dan Selec, they have released five apps and a couple of games. There are plans to expand to seven more cities.

In both these examples parents with means are offering their children opportunities. There's nothing wrong with that but, there are many parents who do not have the means. There are many young adults on the Spectrum who do not have the support from their parents. As a community, we need to come together to find solutions for young adults on the Specturm. Many are waiting for the chance.

At FOCUS Center for Autism, this subject is on the front burner. When I was on the Board we made attempts at expanding our transitional role. Now as a member of the development team the need for funding has come into sharper focus. We hope to be offering housing and support services for young adults transitioning out of the system at age 18. The stumbling block is always resources.

Wednesday, September 25, 2013

Buffet denies he wants to scrap Obamacare

Republicans and Tea Party members take his comments out of context. Nothing unsual there when the end justifies the means. Just lie and keep on lying.

Warren Buffett on Obamacare
A three year old interview was taken out of context by a blogger. Now Republicans are running with it. It doesn't matter how many times Buffet denies he called for scrapping the Affordable Care Act. Certain politicians are bent on misinformation.
A week ago, billionaire investor Warren Buffett denied he wants to “scrap” Obamacare, calling such reports “totally false.” But that has done little to stop some Republicans from spreading the rumor.
A day after Buffett’s denial, Rep. Jim Jordan said, “All the momentum is in our direction. Warren Buffett said yesterday, ‘Scrap the bill.’”
There's more at Factcheck.org. The article takes us back to the origins of this lie. The interview was on CNBC in March, 2010.
In the CNBC interview, Buffett talked about the high cost of health care in the United States — which he correctly said consumes about 17 percent of the nation’s gross domestic product. He compared health care costs to “a tapeworm eating, you know, at our economic body.” He then said the Senate bill would do little to address the cost of health care.
“Unfortunately, we came up with a bill that really doesn’t attack the cost situation that much. And we have to have a fundamental change,” Buffett said.
The host, Becky Quick, asked Buffett if he was “in favor of scrapping this and going back to start over.” He said: “I would be if I were President Obama.” But he also said that he wasn’t changing his mind on the bill and he preferred it to the status quo.
So, what are the ethical standards of politicians who fail to check sources? What about when they know something to be untrue and they continue telling the lie? Is the standard among partisans that you can say or do anything as long as you win? Has this become the ethical standard for our society? country?

Thursday, September 19, 2013

Young Adults With Autism Less Likely to Have Jobs

Young Adults With Autism Less Likely to Have Jobs

Articles like this can be depressing. The statistics from the survey of young adults with disabilities don't offer much hope for jobs and independent living. Actually, there were two studies as reported on by HealthDay reporter Brenda Goodman. The first report focused on employment.
Researchers found that only about half of those with autism had ever held a job since high school, and only about a third were currently working. Even worse, young adults on the autism spectrum were less likely to be getting a paycheck than people the same age who had other kinds of disabilities. 
The second study focused on living arrangements. Researchers found that only 17 percent of young adults with autism, who were between 21 and 25 years old, had ever lived on their own. 
By comparison, 66 percent of kids with learning disabilities like dyslexia had lived by themselves, as had 62 percent of those who were emotionally disturbed, a category that includes anxiety, obsessive-compulsive disorder, bipolar disorder andeating disorders. Even those labeled as intellectually disabled, meaning they had a low IQ and slower mental processing, were about twice as likely to have lived on their own as young adults with autism

There Is Hope

If you dig deeper into the article, you'll find the situation is not hopeless.  Study author Paul Shattuck, an associate professor at the Drexel University School of Public Health, in Philadelphia points out that getting these children involved in social activities, extracurricular activities and community service increases their chances for employment. 

Alan Hilfer, director of psychology at Maimonides Medical Center in Brooklyn, New York thinks the study is right on target. He says kids with autism require intensive tutoring, coaching and mentoring to help them find and keep jobs.

In other words, services and treatment are the key to the future for 1.5 million children on the spectrum. They are rapidly approaching adulthood.

I'll be up front. I work for FOCUS Center for Autism. We offer treatment that includes coaching and mentoring. It also includes training in social skills and milieu therapy. "The milieu or “life space” is a planned treatment environment that is constantly supporting, nourishing and reinforcing a child’s ability to learn and grow. It is a “social incubator” if you will, in which every day events and interpersonal interactions are used as clinical opportunities for learning."  We're one of the few in Connecticut offering treatment on a daily basis. There needs to be much more so these young adults can be engaged and productive.


Friday, September 13, 2013

FOCUS at the Lyceum

FOCUS Center for Autism has an event coming up at the Lyceum in Hartford. The title of the event is Meet the Many Faces of Autism. There will be food and beverages. Some Speakers will speak (they promise to be brief). Some talented individuals with Autism will be there to meet and greet you and perform. They'll surprise you. And, there'll be an Autism Spectrum Unplugged Panel.

I was asked to come up with a tag line. What do you think? Which works best?

  • Expect the Unexpected
  • It’s More Than Meets the Eye 
  • Time to Shift the Paradigm 
  • When we change the way we look at things, the things we look at change." - Dr. Wayne Dyer 
  • “autism is more like retina patterns than measles” ― Naoki HigashidaThe Reason I Jump
  • “I didn't get where I am today by not being autistic” -Larry Arnold



Meet the Many Faces of Autism will be October 16th, 6pm to 9pm with the help of our partners The Connecticut Autism Action Coalition, The Connecticut Department of Public Health and, UCONN'a AJ Pappanikou Center for Excellence in Developmental Disabilities